Labari mai dadi ga yara masu fama da ciwon sikila da cututtukan jini na kwayoyin halitta, akwai fatan samun magani

 Wani fitaccen likita ya fada a yau cewa jerin nasarorin da aka samu a asibiti za su kawo sauyi kan maganin cututtukan jini da kuma tsawaita tsawon rayuwar yaran da ke fama da cutar sikila da thalassemia. Likitan ya ba da shawarar maganin dashen kasusuwa

Rabea Hanna, MD, kwararriyar likitan jini a yara, likitan dabbobi da kuma ƙwararrun dashen kasusuwa a asibitin Cleveland da ke Amurka, ta ce manyan canje-canje a cikin jiyya za su faru nan da shekaru biyar zuwa XNUMX masu zuwa, gami da gagarumin ci gaba a dabarun dashen kasusuwan kasusuwa, hanyoyin kwantar da hankali da magunguna. .

Dr yace. Hanna, a jawabin da ta yi a wajen taron kula da lafiya na Larabawa da aka gudanar a Dubai, ta bayyana cewa, hanyoyin da aka fi amfani da su a halin yanzu, wadanda suka hada da karin jini da magunguna, suna kawar da alamun cutar, kuma ba sa warkewa, tana mai cewa da yawa daga cikin majiyyata suna mutuwa a sakamakon kamuwa da cutar. karancin shekaru, sannan ya kara da cewa: Matsakaicin rayuwar yaron da aka gano yana dauke da cutar sikila ya kai shekaru 34 kacal, sai dai idan an yi masa dashen kasusuwa, don haka sai mun samar da maganin warkewa, kuma a halin yanzu babu magani sai kashin kashi. dashe, kuma mafi kyawun sakamako yana zuwa daga bargo da wani ɗan'uwa ko 'yar'uwa ya bayar."

Dakta ya bayyana. Hanna ta ce, a cikin ‘yan shekarun da suka gabata an sami babban ci gaba a fannin dashen gabobin jiki, ta hanyar dogaro da ‘yan uwa rabinsu iri daya, a matsayin uwa ko uba, wadanda ke da rabin kwayoyin halittar yaron, la’akari da cewa hakan yana ba wa yara da yawa damar samun sauki. ta hanyar maye gurbin ƙoshin lafiyayyen kasusuwa da ƙashin ƙashin da suke da shi.

Sabbin magunguna za su kasance da sha'awa musamman ga yawancin ƙasashen Larabawa, inda adadin cututtukan sikila da thalassemia ya fi na Turai ko Arewacin Amurka. Dukansu cututtuka suna haifar da rashin daidaituwa a cikin haemoglobin, bangaren da ke da alhakin jigilar iskar oxygen a cikin kwayoyin jinin jini.

Kwararren masanin ilimin cututtukan jini na yara da dashen kasusuwan kasusuwa a asibitin Cleveland Clinic ya bayyana cewa cutar ta thalassemia tana faruwa a kasashen Gabas ta Tsakiya fiye da yadda ake samu a Amurka, wanda hakan ke nuna cewa yawan ciwon sikila ya dan karu, musamman ma a kasar Saudiyya. Hadaddiyar Daular Larabawa. Ya kara da cewa: "Daya daga cikin kowane mutum 12 da ke cikin UAE ana daukarsa a matsayin mai dauke da kwayar halittar dake haddasa thalassaemia."

An tabbatar da Dr. Hanna ta ce gwajin dashen kasusuwa na kasusuwa, Haplo-transplants, har yanzu yana cikin matakai na biyu da na uku, don gwada ingancinsu da illolinsa, lura da cewa asibitin Cleveland ya taka rawa a wani binciken farko da ya yi amfani da gyare-gyaren chemotherapy don taimakawa wajen shiryawa. marasa lafiya don dashi.

A gefe guda kuma, maganin kwayoyin halitta ta amfani da DNA da aka gyara ta hanyar shigar da kwayar halitta mai aiki don maye gurbin maye gurbin kwayoyin halittar da ke haifar da rashin lafiyar jini yana ba da damar warkewa fiye da dashen kasusuwa.

Sakamakon binciken da aka gudanar a lokacin kashi na farko na gwaje-gwajen, wanda ya shafi wannan bangare na maganin kwayoyin cutar thalassaemia, ya kasance "mai ban sha'awa sosai," a cewar Dr. Hanna, duk da cewa tana cikin matakin farko, ta lura cewa za a dauki wani lokaci kafin a sami magani, kafin hukumar kula da ingancin abinci da magunguna ta Amurka, yayin da wasu ke jiran amincewa, kuma a nan dole ne a lura cewa wadannan sune. ba magungunan warkarwa ba, amma suna iya rage tsananin cutar.

Kalaman Dr. Hanna, a lokacin jawabin da ya yi a gaban taron kula da lafiyar yara a gefen taron kiwon lafiya na Larabawa, inda likitoci da dama daga asibitocin Cleveland Clinic suka shiga cikin jawabin, wadanda suka yi musayar tare da raba ilimin su da kwarewa tare da mahalarta. Yana da kyau a lura cewa Cleveland Clinic yana da alaƙa mai daɗe da haɗin gwiwa tare da Nunin Kiwon Lafiyar Larabawa da taron, kuma yana ba da izini a ci gaba da ilimin likitanci ta hanyar kwasa-kwasan da aka gudanar yayin taron.