Usuku lwehlabathi lwe-Syndrome

Igama lam ndinguSheikha Al Qasimi, ndineminyaka engama-22 ubudala, ndiqhelisela ubugcisa bokulwa, kwaye ndibambe ibhanti elimnyama kwiKarati. Ndihlala eSharjah. Ndingu sisi, intombi kunye nomzukulwana.

Ndikwanengxaki ye-Down syndrome.

La mazwi ambalwa ashwankathela imeko yam, kodwa akachazi umlingiswa wam. Yinxalenye yobomi bam, kodwa ayingomqobo kubomi bam kunye nokukwazi kwam ukufezekisa amaphupha am, ukoyisa uloyiko lwam, okanye ukundithintela ukuba ndiphile ubomi bam ngokupheleleyo.

Kwezi veki zimbini zidlulileyo, ilizwe lam lifumene ngaphezu kwe-7500 yeembaleki, oonyana, iintombi, oomama nootata, ukuba bathathe inxaxheba kwiMidlalo yeOlimpiki eKhethekileyo yeHlabathi i-Abu Dhabi yowama-2019.

Ngamnye waba mbaleki ubonise isakhono esimangalisayo sokukhetha imidlalo abathatha inxaxheba kuyo. Abanye babo bakwazile ukugqwesa kwaye baphumelele uloyiso, ngelixa abanye bengafikelelanga kwinqanaba eliphezulu, kodwa okuqinisekileyo kukuba umntu ngamnye ukwazile ukufezekisa amaphupha akhe ngokumela abahlobo, usapho kunye nelizwe lakhe kumsitho okumgangatho wehlabathi.

Kwaye ngamnye kubo ngumdlali onengxaki yengqondo.

IiOlimpiki ezikhethekileyo ziye zangqina amaxesha ngamaxesha, ukususela ekusekweni kwayo kwiminyaka engama-50 eyadlulayo, ukuba ubukho bolu celomngeni abuthinteli oko umntu anokukufeza, yaye akubuthinteli ubuchule nobuchule bakhe.

Oku kungqinwe ngamabala emidlalo, amadama okuqubha kunye neendawo ezahlukeneyo ezibone ukhuphiswano kuyo yonke imidlalo ngaphakathi kweMidlalo yeOlimpiki eKhethekileyo yeHlabathi i-Abu Dhabi ka-2019 iveki yonke.

Njengomdlali wase-Emirati, ndonwabile ukuba yinxalenye yeMidlalo yeHlabathi ebanjwe ngu-Abu Dhabi.

Esi siganeko e-Abu Dhabi simele ithuba elimangalisayo lokuba i-UAE ibonise ukukhanya kwimigudu emikhulu ethathiweyo ekufezekiseni ubumbano kunye nomanyano kubantu abazimisele njengam kuluntu lwasekhaya, nakuwo onke amacandelo oluntu e-Emirates.

Kwaye ngokukhawuleza, ingcamango ehlala ijikeleze abantu abaneengxaki zengqondo yinto edlulileyo. Wonke umntu kwi-UAE usebenzela ukutshintsha isimo sengqondo kunye neengcinga zabo.

Abantu abazimiseleyo kunye nabantu abane-Down Syndrome banendima ebaluleke kakhulu ekufuneka bayidlalile kuluntu lwase-Emirati, kwaye ngoku bemi ecaleni kunye namalungu angoogxa babo kuluntu.

Imiqobo ekhoyo iye yachithwa lumanyano oluquka izikolo, iiyunivesithi, amashishini, kwanamakhaya kwilizwe liphela.

Ubunkokeli obulumkileyo be-United Arab Emirates bukwakuqinisekisile ukuzinikela kwabo ngokupheleleyo ekwakheni umanyano kunye noluntu olumanyeneyo oluqinisekisa umntu ngamnye ngeyona nzuzo ibanzi yexesha elide.

Ngokubonisa eyona mizekelo ibalaseleyo egxininisa ukuzinikela ekuphumezeni iinjongo zomanyano, ubunkokeli bethu obulumkileyo bukhuthaza ilizwe lonke.

Mna ngokwam ndibonelela ngomzekelo wokwenyani wenzuzo esiyifumana kubumbano kwaye singajiki ukukhubazeka kube sisingxengxezo sokulahla okanye ukuhlukanisa abantu abazimiseleyo, nokuba kukwimfundo okanye ngexesha lobomi babo bemihla ngemihla.

Njengomfundi ophumelele kwiSikolo seNgesi saseSharjah kunye neSikolo saMazwe ngaMazwe soBugcisa kunye neSayensi eDubai, ndachitha iminyaka yam yesikolo ndikunye nabantwana endandifunda nabo ababengakhathali ngengqondo.

Andizange ndibe likheswa okanye ndifunde ndedwa, kodwa ndandisoloko ndisamkelwa phakathi kwabo ndandifunda nabo eklasini, ababa ngabahlobo bam.

Ndaphenjelelwa ngexesha lemfundo, kwaye ubuntu bam bakhula ndaza ndakhula ukusa kumlinganiselo omkhulu ngenxa yokuba phakathi kwabantu bezizwe ezahlukeneyo, ubudala nobuchule kwakunye na kakade.

Ndiyathanda ukucinga ukuba abantwana endifunda nabo baye bangenelwa ngokufanayo ngokuba seklasini nam.

Kum, iimbono zam ngomanyano azitshintshanga kwaphela kule minyaka idlulileyo. Yinto endihlala ndiyiva, amava kwaye ndonwabela.

Ubomi bam bebusoloko busekelwe kwimigaqo yomanyano kunye nokuba kunye. Andizange ndifumane unyango olwahlukileyo kusapho lwam ngenxa ye-Down syndrome. Le meko ayizange ijongwe njengesiphazamiso kubo okanye kum.

Basoloko bexhasa ukhetho lwam, kwaye bendisoloko ndikhuthazwa kwaye ndixhaswa xa ndithatha isigqibo sokuqhelisela ubugcisa bokulwa.

Ngokuxhomekeke kukhetho lwam lomthambo, ndiye ndakwazi ukunxibelelana nabadlali abaninzi, abantu abakhubazekileyo ngokwasengqondweni, kunye nokunye.

Emva kokuphumelela ibhanti elimnyama kwiZiko leKarate yaseJapan iShotokan, ndajoyina iqela le-Olimpiki ekhethekileyo ye-UAE kwaye ndathatha inxaxheba kukhuphiswano lwe-karate kwinqanaba lasekhaya okanye lamazwe ngamazwe.

Ngelizwe lam, i-UAE, ibamba iMidlalo yeHlabathi, ndizaliswe ziimvakalelo zokuzingca, kwaye ukuthatha inxaxheba kuMatshi weThemba yayiliphupha elajika laba yinyani.

Kwakhona ndibe nexesha elimangalisayo le-judo kwiMidlalo yeHlabathi kunye nokuthatha umngeni omtsha kubomi bam bezemidlalo.

Nangona ndingazange ndikhuphisane, ndingazange ndikwazi ukuphumelela iimbasa, ndizimisele ukubonisa ukuba Abantu Abazimiseleyo banobuchule nobuchule bokudlala indima ebaluleke ngakumbi ekuhlaleni.

Namhlanje, ngaphandle komsitho wokuvala ngokusemthethweni iMidlalo yeOlimpiki eKhethekileyo yeHlabathi i-Abu Dhabi ka-2019, ibali lethu lisekwisiqalo kwaye siya kuzama ukuqhubeka nokuqhubela phambili.